Add to Technorati Favorites
 

Recent Posts

 

Archives

My Personal Battle With Bipolar

On September 9rd 2003, my doctor diagnosed me with Bipolar II. (Bipolar II is mostly depressive with some manic episodes. Bipolar I is full blown mania with little depression) I started on the first of what would become many medications until we found the right combination that would sustain a sense of stability.

I began my new life on a path with a name for what I'd probably had since I was a teenager but had been left undiagnosed my entire life. I was 42 years old. I'd finally felt free. Someone had a name and a treatment for the battle I'd been fighting all my life. I was no longer alone.

Until my medications stabilized, I lived through what I can only describe as a roller coaster hell of major highs and lows – mania and depression.

My doctor described my diagnosis to me in this way: I'm a 78 RPM person trying to function in a 33 1/3 world. For you baby boomers, you'll know what I mean. If you're younger than a baby boomer and don't understand the analogy, ask your parents to explain it to you.

When I'm manic, I'm like the energizer bunny. Always going. Creating something. Wanting something. Right after I got diagnosed, I jumped into crafts and started making these little wooden window seats. I didn't create one or two, or a few. I created dozens. And dozens. And boxes full. I obsessed over getting every single wooden window seat in the Tampa area so I could make something out of it. Then I wanted a puppy. (Thank goodness my husband saw fit to tell me no at that time) Then I jumped into soap making. I made pounds and pounds of soap. (All of this is in less than a week.)

One of the first things I did after diagnosis, was to purchase some books on Bipolar and read up on the illness. I wanted to know as much as possible and what I could do to help myself. I learned to eliminate as much stress as possible from my life as it's a definite trigger to a mania or depressive episode.

I learned to help identify my own symptoms that occur prior to a mania or depressive episode and take action ahead of time to help ease my way out of them or through them with less intensity.


For me, heading into mania my symptoms would be:

1.excessive talking
2.increased socialness
3.racing thoughts
4.irritability
5.over excitement and restlessness
6.spending too much money
7.increased self esteem
8.loss of interest in food
9.starting too many projects
10.unable to sleep


Heading into depression my symptoms would be:

1.no interest in other people or activities
2.feeling tired all the time
3.disinterested or sad
4.low or no motivation
5.sometimes can't get out of bed
6.very low self esteem
7.agoraphobia
8.pretend to be happy on outside but unhappy on inside
9.might turn to food, or find food less appetizing
10.thoughts might turn to harming myself (depending on how low the depression is)

How do I cope with this? I have an agreement with my husband, my therapist, my psychiatrist and my family doctor. Whoever I can reach, gets notified that I'm experiencing these symptoms and I need help. I immediately cut out everything in my life that isn't a priority. I stay as calm as possible. I go for a walk. I read a book or watch a movie. I take lots of breaks and make sure I take the extra medication my doctor prescribes.

But, to me, being Bipolar feels like I'm an alien among the rest of the human population. I react differently to various situations. I don't feel like I have the same emotions. What makes some people cry or laugh doesn't for me. I know a lot of it is because of the medications I'm on. I no longer view the world through the same window as other people do. I feel different. Isolated. I have the disease no one wants to talk about. Mental Illness.

I also have Generalized Anxiety Disorder and Panic Disorder. With all of that combined, it makes for a very stressful person. I'm constantly anxious, nervous, overeating, clenching my jaw (not great for my TMJ), losing focus, breathing shallow, having my heart race, and staying tense. I'm not able to concentrate on anything except the thoughts or words that are repeating in my head feeding my panic.

I cycle from manic to depressive to stable on an irregular basis. There is no predicting when I will have the next cycle. My medications are really good at keeping me as stable as possible. But that hasn't always been that way. My symptoms come and go and I usually experience some degree of a symptom. I’m always aware of my illness, but there are many times when I’m stable and go about my life knowing that I am a capable, productive part of society. I go to the grocery store, get my hair cut, take my dog to the vet. Normal, everyday activities. I think that all of those places have been extended into my comfort zone. However, being aware of my illness, I know there are places or activities that I just won’t do because I don’t want to trigger an episode. Like crowded places, or unknown places that might cause me stress. I can handle the mall for short periods of time. I usually park outside the store I want to shop at and go directly to it, instead of drifting through the mall. However, when I'm stable, I do like walking through the mall. So, it all depends.

My cycles don’t follow the calendar. I don’t know that I’m going to slip into a manic episode on a certain day. I can’t predict that next month I’m going to be depressed. They just happen. There really is no rhyme or reason for them. I do have a bit more control over my anxiety and panic. I just don’t put myself in situations where an episode might occur. There are occasions when panic still happens. I use one of my coping techniques, and/or take an Ativan, and wait for it to go away.

I definitely hide my feelings and reactions when I’m around other people. But, I’m so careful to make sure I’m not ever in a situation where something like that might occur, it’s very rare for me to end up in a severe state around others. My husband is very good at helping me recognize when an episode starts and he’ll help me by being proactive. He can tell sometimes before me, when it would be time to take an anti-anxiety pill, to head off a more severe reaction.

Only a very few select people know the depth of which my illness carries me. Some friends know that I have an anxiety disorder and am not always comfortable outside my normal comfort zone, like my house. I rarely accept invitations for social functions because I’m afraid I’ll have an episode while I’m there. Mostly, the episodes start before the function begins. I get anxious just thinking about going. Even out of the few select people, I don’t think anyone knows I’m Bipolar. I have a few online friends that I consider a support group, that know I’m Bipolar. I’m not ashamed of it. I just don’t think people truly understand the illness. For me, early on when I was diagnosed, I didn’t think I was capable of explaining it to people. Now, it’s just become habit not to say anything. I guess the longer I don’t tell others, the harder it is to say, “look, I’ve had this illness for all these years and never told you.” Bipolar has gotten some really negative press on television and in the newspaper and I don't think they present the disease properly.

I heard someone describe someone else one time and they said she was “useless” because she was Bipolar. It made me cringe. But, it also made me stay quiet. How could I share my story to this person who had such a preconceived notion about what Bipolar was all about?

Before I was diagnosed with Bipolar, I had major mood switches. I’m sure it was difficult on my family to know “which person” I’d show up as next. But, they’d lived with me like that for so long, it was just “mom being mom.” The anxiety and panic disorders were more difficult for my family to accept. Mostly because I wasn’t usually afraid of anything. I rode a motorcycle, I loved roller coasters, and I’d jump in the car or on a plane to go anywhere. All of that changed. My family had to change with it as well. I started making excuses about why I couldn’t do certain things, knowing that I was disappointing my family, but unable to control myself or the situation any other way. When I was diagnosed and started receiving medication, it was easier to work up to certain activities. I would go to the amusement park again, but I didn’t ride the roller coaster. I had to give up my motorcycle, but that didn’t mean my husband had to give up his. Trips were still difficult; but appropriately medicated, I could tolerate them. I was able to participate again with my family instead of being an outsider, looking in. But, I still find myself making excuses first when asked to do something outside my home environment.

Going back even further, I spent more time depressed as a child and a teenager. But, as the oldest child, and being from a family with step parents and adopted parents and seven children, I didn't get much notice. No one even noticed when I wanted to kill myself at age 13 when my adopted father took me to bed after telling me about sex for the first time.

When I had my children, I went through major manic phases with my hormones totally out of whack. No one understood what was going on with me. I didn't even know. We all just thought it was me being me.

After my divorce, I went into one long manic episode that lasted several years. I had several sexual exploits, I spent money like it grew on trees, I lost weight, I acted totally out of character. I did things I never would have done if I were stable.

As always, what goes up, must come down. And, in the case of being manic, once you go up, you must come down. And, after a manic episode, comes the depression cycle.

At first, my depressive cycles didn't last very long, then I was back to manic. I cycled fast. I'm what
is called a “Rapid Cycle” Bipolar.

On a manic high, I dated a guy 11 years younger than myself. We told ourselves it was just for fun and not to get serious. Well, I started to get serious, then he started to get serious. But, when he got serious, he backed away and left our relationship. Devastated me. So much so, that this was my second attempt at wanting to kill myself. I had the pills and the alcohol. I could just combine them and no one would know until they found me. But, I don't know what stopped me unless it was my religion telling me I don't believe those who commit suicide go to heaven. But, instead, I wrote in my journal. All night, until I got over the urge to take those pills.

Things happen for a reason, and I truly believe that. That guy was just an interim until I met my best friend, my soul mate, my husband. We were married in 1998, and he went through a lot with me. My Grave's Disease diagnosis. My Spinal Stenosis diagnosis. And, finally the big one. My Bipolar diagnosis.

However, about the time I knew my husband, I was on a major depressive cycle, and I kept it well hidden. I was always pretty good at that. I acted happy on the outside but wasn't happy on the inside. When I was on my manic highs he just thought I was being extra creative. And I was. And, he just thought I was being me. You see, I had earned a nickname back from a long time ago, “Loopy”. And, it stuck with me all through the years. And, I lived up to it. I was definitely “loopy”.

I think my husband doubts my diagnosis at times. Only because I tend to be “stable” most of the time with medication. He wasn’t with me during my past “out of control” life. I remember that time when I was totally oblivious to my symptoms, not knowing what I was going through. or how they were affecting me or the people around me. I look back on that part of my life and I'm so grateful that I didn't get into serious trouble or hurt anyone. He only sees me now, with mild swings as compared to the way I was before medication. If I ever went off my medication, he might then see that other side of me. That really way out of control me. I hope to never do that though. With health insurance the way it is, there’s always the chance that I might not be able to afford all the medications I’m on. I don’t even want to think about that.

He's a really good judge of my moods and my anxiety level now. He can tell almost immediately if I’m cycling into a manic episode. The signs are quite clear to him. I start talking really fast, I call him incessantly for the smallest things, and I start taking on more projects than I could possibly handle.

As for me, with the medications I’m on, I don’t have any significant mood changes that negatively affect my behavior. I am pretty much stable. When I cycle into a depressive mood, I become more housebound and less active with my friends. I tend to stop participating in activities I usually find enjoyable. This probably confounds my friends, but I try very hard to not let them know how “down” I feel. I may “disappear” for a while, but I’m not sure how much it really affects others. I do come back eventually, and when I rejoin activities, people are happy to see me. At least it seems that way to me. No one has come outright and asked me what was wrong. So, I guess I’m pretty good at disguising my moods. To me, it seems hard to keep really good close friends, because I don't share the “real” me. So, they don't really know what's going on with me. I guess you could say, I just have friendly acquaintances. I only have one friend who knows I'm Bipolar. And, well, now all of you!

I used to be a technical writer and was also working as a tech writing consultant before I became ill. The stress was too much for me, and in order to maintain a certain level of “saneness”, I had to give up my job. It wasn’t all that bad, because I had always dreamed about being an author, and this was a perfect opportunity for me to start working on that goal.

Being a creative person, I wrote quickly during my manic stages of Bipolar. The ideas flowed and I only had to write them down as fast as they’d appear in my mind. But, mania doesn’t last forever, and at times it cycles into depression. It’s difficult to write when I’m depressed. I can’t connect with my characters or the story. I don’t feel the desire to put words to paper. My doctor uses my writing as a “barometer” to determine where I am in my cycles. If I’m not writing, then we make adjustments to my medication to get me back to it. Sometimes, the depression cycles last for a while. I go through months of no writing, which is very frustrating and difficult for me. I want to write, but the desire to write and the creative forces behind my writing aren’t there.

As part of my medical treatments, my doctor would like to see as few manic episodes as possible. However, I miss those episodes because I felt like I could really harness my writing spirit and capture the ideas that would burst in my mind. I’ve learned to make sure to capture those ideas and write them down before they’re lost forever. I keep binders full of ideas that I’ve thought about while manic. That way, when the mania goes away, I still have the ideas to help me during my “normal (stable)” times. I do have episodes of normality. I can write effectively and with passion. My characters speak to me and I tell their stories when I’m stable. I’ve learned to harness my other writing talents to coincide with my Bipolar cycles. If I’m not “in the mood” to write, I work on other parts of my writing career like promotion and public relations.

I've kept journals for many years and it's never occurred to me to ever doubt my diagnosis. It explains so much in my life. My past is littered with uncontrollable manic episodes and deep depressive cycles. Reading back through my journals only corroborates those times and makes me see them more clearly.

I don't know if I've ever willed myself to get better or cure myself, but I've begged God to make me better. And I've used “self talk” to try and get myself out of a depressive cycle. But, I'm realistic, and I know that this is a lifelong disease. There is no cure. But, that doesn't depress me. It only makes me work harder to find other ways to deal with my illness and to keep stress down in my life.

I do try to keep a healthy lifestyle. I think if you’re eating healthier, taking care of yourself, getting exercise, it’s all going to help. I take vitamins and supplements every day, as well as my medications. I think that they’ve helped me maintain a level of stability that I wouldn’t have otherwise. They’ve given my body the extra boost it needs to deal with my illness. Stress, bad eating habits, too much sugar or caffeine, and irregular schedules can all wreak havoc on my illness. By watching what I eat, avoiding caffeine and getting enough sleep, I know I’m taking steps to lessen my chances for an anxiety episode which can then turn into a manic episode.

Medication side effects are always an issue. Most of the Bipolar medications cause weight gain. Usually those with anxiety issues are compulsive eaters or emotional eaters as well. I know I'm an emotional eater. My weight ballooned to 247 pounds. I'm only 5' 4”. I fought hard to lose the weight. My doctor helped as well by adjusting my Bipolar medications. It took over three years but I've lost nearly 100 pounds.

There are times when the medications lose their effectiveness. It's usually the anti-depressants. So, the doctor slowly stops me from taking it, lets my body readjust to not having the medication in my system, then slowly reintroduces the medication back into my system making it think it’s new. That’s rough on me. It takes around six weeks to do this. A very long six weeks. Sometimes it works. Sometimes it doesn't. Then the doctor has to find a new anti-depressant that I haven't tried yet and see if that works.

This past year at the end of 2007, I went into a very deep depression. More than likely caused by the ineffectiveness of my medication. I usually hear voices, but they're mostly in the background and they don't bother me, but this time they were talking to me. Making me scared and panicky to drive. Why? Because they wanted me to run into a tree. Or head on into traffic. My choice. So nice of them to give me a choice, don't you think?

The voices continued. I told no one. I kept up a happy front while I stayed sad on the inside and struggled with my voices. This was before I had a therapist, psychiatrist, and an agreement with doctors. The voices grew more insistent and louder. They were all I could think about. One time when I was at my doctor's office, I blurted out what was happening to me. We discussed it, the doctor asked me if I had any thoughts of suicide, I said no, and he made some adjustments to my medications.

But, the voices continued.

This time, the voices told me to pick out a tree. So I searched for one. And found one. A nice palm tree on a corner. With a sturdy steel pole behind it, in case the car went through the tree. Perfect tree the voices told me. I felt proud.

So, I told my doctor the voices wanted me to find a tree. He suggested hospitalization. I pleaded with him not to put me in the hospital. He asked if I'd see a therapist. I agreed.

I found a great therapist. She and I clicked immediately. She evaluated me and had me sign a “no suicide” contract. It was easy to sign. I didn't have any thoughts of suicide. The voices hadn't told me to run my car into the tree yet.

When I got home, I finally told my husband what had been happening and his solution was to take my car keys away. Reasonable solution, except it turned me into a prisoner and made me dive deeper into depression.

The voices and I devised a plan to get the keys back so I could have the car back. We told my husband the voices were gone. That I could drive again. No problem. We told the therapist, no more problems, I can drive again. I feel much better.

I got to drive to the doctor's office and had to pass that tree. As I drove past it, it took all my effort to keep from turning into it. The voices pushed me to drive into the tree. I couldn't do it. I got to the doctor's office. I couldn't lie to him. I told him I found the perfect tree. He was immediately on the telephone with the hospital to admit me. Here in Florida it's called a “Baker Act”. It's when the patient is admitted involuntarily.

I stayed in the hospital for six days. Six long days. I was on suicide watch. I didn't understand why. My weapon of choice was a car. How in the heck was I supposed to get a car up to the 4th floor of the hospital?

My psychiatrist changed my medications. Took me off some. Put me on a new one. Slowly over the six days, the voices went away. The urge to drive into a tree went away. And, best of all? I got happy. I'd been sad for so long, I couldn't remember. But, the difference was breathtaking. Unbelievable.

When I left that hospital six days later I was grinning from ear to ear, and not just because I was leaving, but because I was genuinely happy. I got home and I was happy. I heard a song on my iPod while I was walking the next morning and I knew it was meant for me and my new lease on life, “Walking on Sunshine”.

And, I've been happy and walking on sunshine ever since. My husband took me to Hawaii a few weeks later and then a week after that my daughter gave birth to my first granddaughter.

Getting hospitalized was one of the best things that could have happened to me. I have a new outlook on life. New medications. Less anxiety. Less panic. And, more happiness.
posted by Vicki M. Taylor at 8:01 AM
7 comments links to this post
 

Battling a Life Long Disorder


Hello,

My name is Julie Fast and I have bipolar disorder. I was diagnosed with the illness in 1995 at age 31. I created a treatment plan in 1999 that is now used by people all over the world to manage the illness. I have been close to suicide too many times to count and have had destructive manic episodes since the age of 17. I'm the author of Loving Someone with Bipolar Disorder, Take Charge of Bipolar Disorder and Get it Done When You're Depressed. I wrote all of these books when I was depressed and often psychotic.

Bipolar disorder is a rotten illness.

I'm writing you on behalf of a person who cares about you very much. This person has been diagnosed with the illness bipolar disorder and is concerned you may not understand the reality and seriousness of the diagnosis. I hope that reading this letter can open a window of understanding to help you see that although bipolar disorder can look like someone is faking, whining, lying, making excuses, causing you trouble, making waves, being weak or just making it all up, it's not. It's a illness that originates in the brain. It's a physical illness that comes out in emotional ways, which is why it's so hard for people to understand.

Here are some interesting details about bipolar disorder:

- As with any major illness, people with bipolar disorder share the same symptoms- the symptoms are so similar for people around the world that I can list what a person says, thinks and does during certain mood swings without knowing them. This is quite a party trick! Thus, it's not random emotional behavior that causes problems, but a very structured set of symptoms that lead to a bipolar disorder diagnosis.

- Bipolar disorder is under diagnosed because of the reasons you may feel it isn't real- it looks like those of us with the illness just need to get a handle on our emotions! The problem is that we can't without the proper treatment. If we could handle our emotions, then the overwhelming symptoms of bipolar disorder would be easy to manage.

- Bipolar disorder affects an estimated 17,000,000 million people in the US alone. I think this is a ridiculously low number as I meet people with a bipolar diagnosis almost everywhere I go. It's important to get this into perspective- it's estimated that around one million people in the US have HIV/Aids - one million. Compare that to the 17 million who have bipolar disorder. You probably know a lot more about AIDS than bipolar, but the chance of your knowing someone with AIDS is very slim. You already know someone with bipolar disorder and they need your help.

Bipolar disorder has killed far, far more people in the US than AIDS.

- Bipolar disorder as an illness has not increased in the past 50 years, but there is a lot more awareness these days which makes it seem like doctors are going crazy with the diagnosis! Awareness is a good thing- the diagnoses are real.

- I write treatment plans and can't survive without one, but there is a fact that no one with the illness can deny:
Without medications, the life quality for a person with bipolar disorder is very, very low.
This means that most people with bipolar disorder need medication treatment. Just as people with cancer need chemotherapy.

- All people with bipolar disorder will struggle with relationship issues, work problems, physical health, parenting, cooking, going to school, thinking, traveling, etc, etc at some point in their lives. We all get overwhelmed very easily. Our struggles, as you may have noticed are far more emotional and often out of control than what is considered the norm.

- Anything that causes an emotional response can lead to a bipolar disorder mood swing. Think of it this way- if our lives are a teeter totter- with our stable selves in the middle, we all have to struggle to keep our lives in balance. Get a picture of that teeter totter in your mind and then put a 10 ton weight on one side and see how hard it will be to find the middle stability. That is what it's like to have bipolar disorder- it's a ten ton weight that we didn't ask for. If it were golf, our handicap would be off the charts!

When the weight is too heavy and the balance is too hard, people kill themselves to get out of the pain.

- Up to 20% of people with bipolar disorder kill themselves. I get letters from family members quite often thanking me for my work - and then giving me the news that their son, daughter, father, mother, lover, grandmother, etc has died. They thank me because they know that we all tried to help the person who had the illness called bipolar disorder- but the illness won. Just as cancer wins sometimes. Suicide is NOT a weakness. It's an outcome of an illness that was just too strong. The 10 ton weight on their shoulders was just too much.

As you can imagine, I could go on forever here, but I do have a final question:
If someone who loves you has said they have bipolar disorder and you have your doubts of the diagnosis- or even feel that the whole thing is a sham, why do you feel they have told you the news?

They have told you because they are scared and need your love and support. Bipolar disorder is an illness that has been documented for over 2000 years. It's a killer- just as cancer is a killer. The medications can be harsh and without support, the person with bipolar disorder can lead a life of constant hell. It needs treatment and the best way for treatment to work is through education especially for the people who love us.

I recently asked my mailing list to send in questions for my radio show- my mother was the guest and I wanted to get an idea of what information they needed. Hundreds of people replied and many people asked how they could get someone they cared about to believe the diagnosis and give them help, especially around medications. This is why I wrote this

I encourage you to let go of your anger, frustration, sadness and disbelief - these feelings are all normal by the way- and see bipolar disorder for what it is- a very serious illness. Someone you love has bipolar disorder and they need your help. The rest is up to you.

Julie A. Fast www.bipolarhappens.com

Julie Fast - www.BipolarHappens.com

P.O. Box 86728
Portland, OR
97286
US


Like Julie, I have Bipolar as well. And I'll be on BlogTalk Radio on May 15th 2008 at 12 noon EST to talk about it with Beverly Mahone. For an encore presentation, I'll be on Straighttalk at 8:00 EST that same evening for an open discussion. Follow the link, sign up and you'll receive confirmation and a phone number to call and a code to use to access the teleseminar. The list of teleseminars are to the right of the signup form.

Come listen and ask questions. I look forward to "seeing" you there.

Labels: , , , ,

posted by Vicki M. Taylor at 12:28 PM
6 comments links to this post